Tuesday, November 22, 2011

No More Casts

Nikolas got his casts off this morning. I'm sure everyone in the building heard him screaming. His doctor was very happy with the results of the surgery. She said his feet are looking great. To keep his feet from turning back in, he has to wear special shoes that are connected with a bar. Right now he needs to wear the shoes/bar combo most of the time. He was also fitted for braces, and we will get those on December 14th. Once we get the braces, he'll be able to wear those with his tennis shoes during the day and only need the shoes/bar combo at night.

He is not a big fan of the new contraption. He hasn't figured out how to get around with it on yet, and it's not very comfortable for sleeping. He also gets upset that he can't stand up right now. His leg muscles are so weak that they can't support his weight yet. There were lots of tears at our house today. He's a smart little guy, so I'm sure he'll figure it out in a couple of days.

We go back to Riley next Tuesday for a follow-up appointment with the doctor, and then we go back again on 12/14 to get his custom-made braces.

Sunday, October 30, 2011

Three Months Home + Surgery Update

Three months ago we arrived home as a family. Nikolas continues to do a wonderful job of adjusting to his surroundings. He's a happy little guy and we are so lucky to be his parents. He continues to be a good eater. He likes almost everything and is easy to please. At his last height/weight check appointment he had gained four pounds and grown two inches. He's still tiny, but he's getting there.

We have seen many improvements in his ability to play and to focus on activities. He loves to push his toy cars around on the floor. Blocks and musical toys are also a big hit. He still doesn't have much interest in books. He will watch Yo Gabba Gabba! or Jack's Big Music Show while he eats his snack before bed, but other than that, he has shown little interest in television.

He understands English very well, but he doesn't use a lot of words to communicate. He says about 12-15 different words when he wants to. Since he is only two and has only been exposed to the English language for three months, his doctors are not concerned about this. They all say that he'll start speaking more when he's ready.

He continues to sleep nicely. He goes to bed at 8:30pm and wakes up around 9:00am. He also naps for a couple of hours each afternoon. He usually goes to sleep without any problems. He loves his lullaby CD and knows the routine at both bedtime and nap time.

He enjoys getting out of the house and interacting with others. He likes going to church, going for walks and shopping for just about anything. He enjoys playing on his swing outside and watching the ducks by the pond. He is a very helpful little guy. He likes to help daddy unload the dishwasher every evening and is learning to pick up his own toys.

We've been keeping ourselves very busy this fall. We enjoyed Zoo Boo at the Indianapolis Zoo last weekend and have taken a trip to the apple orchard. We've also made several trips to Riley Hospital for Children, the most recent being for his club foot surgery on Friday.

His surgery went very well, and he did such a great job. The doctor was able to release his heel cords on both sides with just a small incision instead of having to make a larger incision and doing a more complex procedure. We'll go back to Riley on 11/22 to have the casts removed for good. He'll be fitted for braces at that time, and he'll wear those for as long as they are needed. Everyone at Riley does such a great job of making both the parents and children feel comfortable. Nikolas is currently on painkillers, although we aren't sure if he is experiencing much pain. He's in the small percentage of children who don't get drowsy with the codine. He gets very hyper, happy and loud after he takes his meds. Thank you to everyone who has prayed for Nikolas during this time.

We are looking forward to lots of fun things throughout the rest of the year. Next weekend Jason's cousin Lori will be visiting while they are in town for the marathon. Nikolas' casts come off on 11/22. We'll be spending Thanksgiving in Dana this year. Our 11th anniversary is in early December, and then we'll be celebrating our first Christmas together as a family of three. We have been so blessed this year. We have also reserved a cabin for the Bulgaria Adoptive Families Reunion in June, and are so excited to meet everyone in person!!

Tuesday, October 18, 2011

Surgery Scheduled

We went to Riley today to have Nikolas' casts changed, and the doctor was very pleased with the way his feet are responding to the casting. After replacing his blue casts with green ones, she scheduled the surgery on his tendons for next Friday, October 28th. After the surgery, he will be in casts for three more weeks. He should get them off right before Thanksgiving. We'll have one more thing to be thankful for!!

Nikolas is doing very well with the casts. He gets frustrated sometimes, but he's handling it much better than I would be. He's learned that although he cannot walk, he can crawl just fine. He gets around the house well, but we still have to carry him up and down the stairs. He's been watching a little more television. He likes Jack's Big Music Show and Yo Gabba Gabba. He plays with his blocks and cars more instead of running around the house. He's had some interest in the Play-Doh, but he still has issues with getting his fingers dirty. He eats the crayons instead of using them to color with, but we'll keep working on that one. He enjoys cuddling more and is learning to be more dependant on us. We're all learning to be more patient. Thanks to all of you who sent us ideas!!

Thursday, October 13, 2011

Orthopedic Update

Nikolas was born with both of his feet clubbed. He had casts in Bulgaria for three weeks when he was three months old followed by several months of braces. The work that was done in Bulgaria greatly improved his feet, but the IA doctor that we saw in August thought we might be able to correct them even more. We met with an Orthopedic Specialist at Riley Children's Hospital today. After examining Nikolas' feet and taking lots of x-rays, she decided that further correction was necessary. The x-rays showed that the bones in both of his heels curved upwards and the bones on the top of his right foot are very close together. Because of these issues, she thought it would be best to start over and redo the entire casting procedure. We will go back to Riley every Tuesday morning for new casts until his feet are in the best possible position. We do not know how long this will take, but 3-4 weeks seems to be the average time frame. It depends on how well his bones react to the casts. Once we are finished with the casting, he will have surgery to lengthen the tendons. This will be followed up with braces and physical therapy. The doctor is optimistic that we will have good results in the end.


Nikolas is a very active two-year-old, so not being able to walk is tough for him (and us). Because he can't go anywhere, he has to be completely dependent on us to do everything for him. Today was a struggle, and I really hope he learns to tolerate the casts soon. If anyone has any ideas of how to entertain a toddler who has to stay in one place, please send them my way. If only he'd watch television...

Wednesday, September 21, 2011

Photo Card

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